• 46.56%
    Walk for a Cure Goal: $20000.00 Raised: $9311.00 18 donations
Can you believe it we will be celebrating 5 years at this years Walk for a Cure. To think 5 years ago I was sitting here thinking I was alone in my fight. Still trying to figure out what this unknown life threatening disease called Mastocytosis was. Now I am an army of many, I fight for thousands that stand beside me. I have a new family that reaches all around the world. Mastocytosis is being diagnosed all over the world in record time. Thanks to The Mastocytosis Society for paving the way in our fight. Thanks to them all of us in New England can be heard in our fight. Thanks to all of you, everyone who joins our fight we are making huge strides. All this and in just 5 years I never would have guessed my idea of raising funds would accomplish this. I never would have guessed that I would have the support and backing world wide that I do. Thanks to all of you for an amazing first 5 years. I am truly looking forward to the next 5 years !!!!!! Remember if you haven't joined our team it's not to late and it's free go to http://www.ericaswalkforacure.com/apps/members/ to join
Ericas Walk for a Cure goes world wide.

We would like to send a special thank you to Jonathan Pronovost, SSgt, USAF
shown here holding a sign saying Ericas Walk for a Cure. Jonathan is currently deployed to Afghanistan. He is a combat medic and took time out to show his support for all of us and what we do.
Thank you so much for your support Jonathan and may you be safe always you will forever be part of us.

For the second year in a row Ericas Walk for a Cure is recognized in Afghanistan. Thank s to  my son's best friend and my adopted son Ryan Zewski who is in the Air Force currently serving in Afghanistan. He sent me these pictures of what is on its way to me on behalf of Ericas Walk for a Cure and all Mast Cell patients. I can't even put into words what this means to me. Be safe Ryan I love you and will see you in December.

Here's a fact:
Mastocytosis can strike anybody at anytime. I wasn't born with this disease, I was 36 when I started getting ill and have Mast Cell issues. I was like many of you who think I am healthy, I have nothing to worry about. Then one day I woke up sick and my hell began. I know I make a lot of post about Mastocytosis and raising funds for research. I do it because it is my life, it is my illness and like you I want my health back. So what I am asking for is my friends, people reading this, to buy 2 less beers this week, a few less scratch tickets, eat out one less night and donate just $5.00 to give me and people like me who suffer everyday of our lives just a little hope, a little support. Fellow Masto patients I am asking you to for help as well. We are all in this together, we are doing this for you as well. Please donate and help us in our fight. I know you all care I truly do but I am asking you to show it.

Helpful Links

                                                            

                                                                                                                                 

                          Check out our on line store     

                                                                                                                                                                                                

                                             

        Walk Map                       Pledge Sheet                       ER Protocol Information

      

          

                               
2013 Walk Registration    Crafting for Awareness       List of recommended Doctors

ME AND MY MAST CELLS

Introducing a significant new resource to help us learn more about all things Mast Cell and Mast Cell Diseases. Check it out at: http://meandmymastcells.com/
Be MastCellAWare.

Today's reality in medical research, A letter from Dr Hamilton

 A letter from Dr Hamilton Brigham and Womans Research

 

                                February 2013

 

                I wanted to add this post to Erica’s Walk for a Cure website to highlight the importance of donations from all of you in the name of scientific and medical research.  As you know, we have spent the last several years trying to characterize the symptoms, physical exam, and laboratory findings of those who suffer from mast cell disorders including mast cell activation syndrome. We are building a database of patients which includes clinical information as well as specimens which can be available for study.  We are moving to the next phase which includes the scientific study of what may cause mast cell activation and why people might get this disorder.  We believe that we have to learn more about mast cell activation before we can more readily diagnose and treat it. 

                Medical research can be very time and labor intensive.  People have to be paid salaries to do this work and the materials and supplies to carry out the research are expensive.  The majority of this work is happening at large academic, research medical centers such as Brigham and Women’s Hospital.  Unfortunately, the Institution itself is not in a position to provide the necessary money towards this research in the form of salary or supplies.  Salaries are generated through clinical work (seeing patients in clinic or performing procedures) or through grants.  Traditionally, the medical research community has relied on government support (e.g. NIH) to make research financially possible.  With our current financial crisis in the government, funds have been stagnant for research and are at risk for further shrinking.  I have personally seen labs significantly downsize as the funds are simply not there to continue the work.  Therefore, it is even more critical in 2013 and future years to support medical research and discovery through private donations from people like you. 

                Financial gifts such as those to Erica’s Walk for the Cure go directly to the research and are not used for any other purpose.  You can be assured that your gift will have direct impact on discoveries that will ultimately improve the health of those who suffer from mast cell disorders.  I, on behalf of Brigham and Women’s Hospital and all who research mast cell disorders, truly appreciate your time and support which allows us to get the job done and search for a cure!!


-Matthew J. Hamilton M.D.

Brigham and Women’s Hospital

Mast Cell Center of Excellence

 


          NORD                                   NIH

What is Mastocytosis and What are the Symptoms ?

 Click on the pictures to learn about Mastocytosis and the Symptoms.

                             

       What is Mastocytosis?                                              What are the Symptoms?

 

Very Special Thanks to our care givers and researchers for giving so much: For more info click on the doctor of interest

Dr Matthew  Hamilton                                          Dr.Norton Greenberger                   

                                                     

Dr Theoharis Theoharides                                         Dr. Mariana C. Castells

                                                   

                                               BRIGHAM AND WOMENs HOSPITAL

75 FRANCIS st. BOSTON, MA. 02115 

(617)732-5500 TTY/TTD (617)732-6458

    To learn more about Brigham & Women's Hospital or to find a Doctor Just lick on the link provided below. __________________________________    

 Brigham & Women's Centers of Excellence

DEAR FRIENDS AND FAMILY

No one can understand what it is like to live with an incurable disease, except for the people living with it. Those with mastocytosis and other mast cell diseases live with life threatening and debilitating diseases everyday. Controlling their symptoms is very challenging. Very little is known about mastocytosis/mast cell diseases, and that is why I need your help to raise money to find a cure.

Ericas Walk for a Cure is a non-profit organization dedicated to helping patients, and health care professionals understand mast cell disorders. what they are and the impact they have on patients lives. The organization donations supports patients affected by mastocytosis/mast cell activation disorders, as well as their families, caregivers, and physicians, through research and education. Everyone involved in this organization volunteers their time because either they themselves have mastocytosis/mast cell disease or someone close to them does. With your help Ericas Walk for a Cure we have assisted alot towards research, education and assisted two families in need of medical assistance with Masto related treatment. So please continue to join us in or fight for a cure. 

 

Sincerely,

Thomas Flynn

Founder /CEO

Ericas Walk for a Cure

 

-4:07

ERICA

Up Coming Events

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VERY SPECIAL THANK YOU TO JET BLUE FOR YOUR SUPPORT

Ericas Walk for a Cure would like to thank Jet Blue for teaming up with us for the third year and making their generous donation of 2 round trip tickets to our fund raising efforts. This incredible donation shows Jet Blues overwhelming support towards all patients suffering from Mastocytosis. Please click on the picture to visit the Jet Blue Web Page today.
All of us at Ericas Walk for a Cure would like to thank all our 2013 sponsors for there support and donations for our continued efforts in search for a cure. Please click on their links and check them out.
        Trader Joe's
Texas Roadhouse           Locals Restaurant

Margaritas                       

         
Our walk supporters :

Flatbread Company           Beverly Depot

Maine Ly NH                     Ron Jillians

River St Grille                    Maria's Pizza

Acapulcos                         Beverly Jade

China River                       Black Trumpet

River House

Very Special Thank You to Gregg the Morning Buzz

I want to thank Gregg and the Morning Buzz for their on going support to Ericas Walk for a Cure over the last five years. You guy's truly Rock !!!! Click here to visit WHEB

 

       

The God Father

 

       

Black Smith

 

       

The Lovely Laura

 

       

Roadkill

 

       

The Man Kelly Brown

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