Mastocytosis can strike anybody at anytime. I wasn't born with this disease, I was 36 when I started getting ill and have Mast Cell issues. I was like many of you who think I am healthy, I have nothing to worry about. Then one day I woke up sick and my hell began. I know I make a lot of post about Mastocytosis and raising funds for research. I do it because it is my life, it is my illness and like you I want my health back. So what I am asking for is my friends, people reading this, to buy 2 less beers this week, a few less scratch tickets, eat out one less night and donate just $5.00 to give me and people like me who suffer everyday of our lives just a little hope, a little support. Fellow Masto patients I am asking you to for help as well. We are all in this together, we are doing this for you as well. Please donate and help us in our fight. I know you all care I truly do but I am asking you to show it.
We would like to send a special thank you to Jonathan Pronovost, SSgt, USAF
shown here holding a sign saying Ericas Walk for a Cure. Jonathan is currently deployed to Afghanistan. He is a combat medic and took time out to show his support for all of us and what we do.
Thank you so much for your support Jonathan and may you be safe always you will forever be part of us.
ME AND MY MAST CELLS
Today's reality in medical research, A letter from Dr Hamilton
A letter from Dr Hamilton Brigham and Womans Research
I wanted to add this post to Erica’s Walk for a Cure website to highlight the importance of donations from all of you in the name of scientific and medical research. As you know, we have spent the last several years trying to characterize the symptoms, physical exam, and laboratory findings of those who suffer from mast cell disorders including mast cell activation syndrome. We are building a database of patients which includes clinical information as well as specimens which can be available for study. We are moving to the next phase which includes the scientific study of what may cause mast cell activation and why people might get this disorder. We believe that we have to learn more about mast cell activation before we can more readily diagnose and treat it.
Medical research can be very time and labor intensive. People have to be paid salaries to do this work and the materials and supplies to carry out the research are expensive. The majority of this work is happening at large academic, research medical centers such as Brigham and Women’s Hospital. Unfortunately, the Institution itself is not in a position to provide the necessary money towards this research in the form of salary or supplies. Salaries are generated through clinical work (seeing patients in clinic or performing procedures) or through grants. Traditionally, the medical research community has relied on government support (e.g. NIH) to make research financially possible. With our current financial crisis in the government, funds have been stagnant for research and are at risk for further shrinking. I have personally seen labs significantly downsize as the funds are simply not there to continue the work. Therefore, it is even more critical in 2013 and future years to support medical research and discovery through private donations from people like you.
Financial gifts such as those to Erica’s Walk for the Cure go directly to the research and are not used for any other purpose. You can be assured that your gift will have direct impact on discoveries that will ultimately improve the health of those who suffer from mast cell disorders. I, on behalf of Brigham and Women’s Hospital and all who research mast cell disorders, truly appreciate your time and support which allows us to get the job done and search for a cure!!
-Matthew J. Hamilton M.D.
Brigham and Women’s Hospital
Mast Cell Center of Excellence
Dr Matthew Hamilton Dr.Norton Greenberger
Dr Theoharis Theoharides Dr. Mariana C. Castells
BRIGHAM AND WOMENs HOSPITAL
75 FRANCIS st. BOSTON, MA. 02115
(617)732-5500 TTY/TTD (617)732-6458
To learn more about Brigham & Women's Hospital or to find a Doctor Just lick on the link provided below. __________________________________
DEAR FRIENDS AND FAMILY
No one can understand what it is like to live with an incurable disease, except for the people living with it. Those with mastocytosis and other mast cell diseases live with life threatening and debilitating diseases everyday. Controlling their symptoms is very challenging. Very little is known about mastocytosis/mast cell diseases, and that is why I need your help to raise money to find a cure.
Ericas Walk for a Cure is a non-profit organization dedicated to helping patients, and health care professionals understand mast cell disorders. what they are and the impact they have on patients lives. The organization donations supports patients affected by mastocytosis/mast cell activation disorders, as well as their families, caregivers, and physicians, through research and education. Everyone involved in this organization volunteers their time because either they themselves have mastocytosis/mast cell disease or someone close to them does. With your help Ericas Walk for a Cure we have assisted alot towards research, education and assisted two families in need of medical assistance with Masto related treatment. So please continue to join us in or fight for a cure.
Ericas Walk for a Cure
Up Coming Events
VERY SPECIAL THANK YOU TO JET BLUE FOR YOUR SUPPORT
Very Special Thank You to Gregg the Morning Buzz
The God Father
The Lovely Laura
The Man Kelly Brown